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Interdisciplinary Team

Integrated Care for people living with Epidermolysis Bullosa

Hospital Bed

The interdisciplinary care model is particularly important for people living with epidermolysis bullosa because of the complexity and chronic nature of the condition. Our team-based approach ensures that all aspects of the disease are managed comprehensively and that both the physical and emotional needs of the patient are addressed. The collaboration between specialists leads to more personalised, effective care, which is crucial for improving outcomes and quality of life for individuals with EB.

 

Why it is important?

Interdisciplinary care team for people living with epidermolysis bullosa (EB) is essential to managing this rare and complex condition, which causes the skin to be extremely fragile and prone to blistering. EB can affect not only the skin but also other organs and systems, so coordinated care from multiple specialists is necessary to address the various aspects of the disease. The importance of an interdisciplinary team is in ensuring that patients receive holistic, patient-centered care that addresses both the immediate and long-term needs associated with EB.

Our eb medical specialties    

pediatric care for people living with epidermolysis bullosa

Pediatric Medicine 

التغذية العلاجية لمرضى انحلال الجلد الفقاعي

Clinical Nutrition

dental care for people with skin conditions

Oral Medicine and Special Care Dentistry

طب الجلدية لمرضى انحلال الجلد الفقاعي

Dermatology

العناية بالجروح المزمنة

Wound Care & Pain Management

الأمراض الجينية

General Practician 

Our affiliates

ديبرا الأردن debra jordan
مؤسسة أجنحة الفراشة

Contact Us

For more information, reach out

Butterfly Wings is a charitable Organisation registered in Jordan (1531)
Amman | Jordan

Butterfly Wings Organisation is a member of the DEBRA International's global network. find out more


DEBRA International is the umbrella organisation for a worldwide network of national groups that
work on behalf of those affected by the rare genetic skin blistering condition, epidermolysis bullosa
(eb).

Butterfly wings organisation

The Butterfly skin charity

info@butterflywings-eb.org

+962 (0) 79 2242 383

© Copyright 2025, All Rights Reserved by butterfly wings organisation | This website is for informational purposes, always check with your physician before adopting any medical treatment.

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