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Terms & Conditions

Terms & Conditions - the basics

Terms and Conditions for Butterfly Wings Organisation

Effective Date: August 3rd, 2023.

1. Introduction

Welcome to Butterfly Wings Organisation (the “Organization,” “we,” “us,” or “our”). By accessing or using our website [www.butterflywings-eb.org], you agree to comply with and be bound by the following Terms and Conditions. If you do not agree with these Terms, please do not use our website.

Butterfly Wings is a company limited by guarantee, a registered nonprofit organisation dedicated to providing palliative care for people living with epidermolysis bullosa and their families to ensure they can grow with a healthy body and skin through their later life.

2. Acceptance of Terms

By visiting our website, you agree to these Terms and Conditions. If you are using the website on behalf of an organisation, you represent that you have the authority to bind that organisation to these Terms.

We reserve the right to update or change these Terms at any time, and we will notify users of such changes by updating the "effective date announced by this page" above. We encourage you to review these Terms regularly.

3. User Responsibilities

As a user of our website, you agree to:

  • Use the site only for general information purposes.

  • Not engage in any activity that disrupts or interferes with the operation of the website.

  • Not upload, post, or share content that is illegal, offensive, or infringes on the rights of others, including intellectual property rights.

  • Not attempt to use any of the published media of the website without authorization.

Failure to comply with these terms may result in a suspension or termination of your access to the website.

4. Privacy Policy

Your privacy is important to us. We collect and process your personal data in accordance with our Privacy Policy, which is available at [https://www.butterflywings-eb.org/privacy-policy]. By using our website, you consent to our collection and use of your information as described in the Privacy Policy.

5. Donations and Payments

If you choose to make a donation to our nonprofit, we process payments securely through [Cash or selected payment provider]. By making a donation, you acknowledge and agree that:

  • Donations are final and non-refundable.

  • You are authorized to use the payment method provided.

  • Butterfly Wings organisation is not liable for any issues arising from the transaction.

6. Intellectual Property

All content on our website, including text, images, graphics, logos, and videos, is the property of Butterfly wings organisation or our licensors and is protected by copyright and other intellectual property laws.

You may not use, copy, distribute, or modify any of our content without our prior written consent, except as expressly permitted under these Terms.

7. Limitation of Liability

To the fullest extent permitted by law, Butterfly wings organisation will not be held liable for any direct, indirect, incidental, special, or consequential damages arising from your use of, or inability to use, our website.

We do not guarantee that our website will be error-free or uninterrupted, and we are not responsible for any harm or damage caused by using our site.

8. Governing Law

These Terms and Conditions are governed by and construed in accordance with the laws of the country of Jordan, without regard to its conflict of law principles. Any disputes arising out of these Terms shall be subject to the exclusive jurisdiction of the courts in the country.

9. Changes to Terms

We may update these Terms from time to time to reflect changes in our practices or for other operational, legal, or regulatory reasons. When we make significant changes, we will notify users by posting an updated version on this page. Please review these Terms periodically for any changes.

10. Contact Information

If you have any questions about these Terms and Conditions, please contact us at:

Butterfly wings organisation

info@butterflywings-eb.org

+962 79 224 23 83

Amman | Jordan

إتصـل بنـا

للمزيد من المعلومات، تواصل معنا

مؤسسة أجنحة الفراشة هي مؤسسة خيرية مسجلة رسميا برقم (1531) 
عمـًان | الأردن

مؤسسة أجنحة الفراشة هي عضو في شبكة ديبـرا الدولية. اكتشف المزيد


ديبـرا الدولية هي المنظمة الأم لشبكة عالمية من الفرق أو المجموعات الوطنية التي تعمل نيابة عن ولصالح الأشخاص المتضررين من المرض الوراثي النادر انحلال الجلد الفقاعي

   أجنحة الفراشة هي مؤسسة خيرية مسجلة في الأردن رقم التسجيل (1531)

 مـؤسسة أجنحة الفـراشة

عمـَان | الأردن

info@butterflywings.org

+962 (0) 79 2242 383

سياسـة الخصـوصية       الشـروط والأحكام

© جميع الحقوق محفوظة 2025، مؤسسة أجنحة الفراشة | هذا الموقع لغايات تعريفية فقط، لذا استشر طبيبك دائمًا قبل البدء بأي علاج طبي

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