Butterfly Wings Organisation
We are "The Butterfly Skin Charity"
Non-profit skin charity that aims to provide palliative care and supportive In-house medical services to people affected with the rare skin genetic disorder "epidermolysis bullosa" and their families.
Who we are
We are a group of national healthcare professionals and community volunteers dedicated to improving the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of”.
What we do
We work to improve the quality of life for people with epidermolysis bullosa until a cure is found. We work with professionals and healthcare specialists to provide a group of services tailored to meet the needs of every EB patient. These services do not replace the need to visit a specialist and are provided as support services to primary health care as ancillary medical services.