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For people whose skin doesn’t work well, we do! Read more

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For the EB Community,

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Educational Day for Patients with Epidermolysis Bullosa on the Importance of Oral & Dental Healthcare:

Educational Day for Patients with Epidermolysis Bullosa on the Importance of Oral & Dental Healthcare:

Educational Day for Patients with Epidermolysis Bullosa on the Importance of Oral & Dental Healthcare:

As part of the health awareness initiatives, an educational activity was organised for patients with Epidermolysis Bullosa and some...

Jan 302 min read

We Are a Priority!

We Are a Priority!

We Are a Priority!

In conjunction with the global celebrations of the Epidermolysis Bullosa Awareness Week (October 25-31), Butterfly Wings Organisation...

Oct 28, 20242 min read

1st MENA Region and African International EB Congress 2024

1st MENA Region and African International EB Congress 2024

1st MENA Region and African International EB Congress 2024

For the first time in Cairo, the International Conference on Epidermolysis Bullosa in the Middle East and North Africa was held. The...

May 11, 20241 min read

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Butterfly Wings is a charitable Organisation registered in Jordan (1531)
Amman | Jordan

Butterfly Wings Organisation is a member of the DEBRA International's global network. find out more

DEBRA International is the umbrella organisation for a worldwide network of national groups that
work on behalf of those affected by the rare genetic skin blistering condition, epidermolysis bullosa
(eb).

Butterfly wings organisation

The Butterfly skin charity

info@butterflywings-eb.org

+962 (0) 79 2242 383

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© Copyright 2025, All Rights Reserved by butterfly wings organisation | This website is for informational purposes, always check with your physician before adopting any medical treatment.

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