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Get Involved

Every donation, no matter how small!

                                                 Could make a difference

Make a donation

"Because of EB, many families face an overwhelming financial burden. The cost of specialized wound care supplies, hospital visits, pain management, and surgeries is astronomical. Even basic needs like bandages and creams can cost hundreds of dollars each month. every EB child and their family need your help to continue receiving the medical care they desperately require."

Details

Account Name:  ajnehat alfarasha 

Account Number: 0510165378415101

IBAN: JO96UBSI5100000510165378415101

SWIFT / BIC: UBSIJOAXXXX

Account Currency: JOD

Bank Name: Bank al Etihad

Sponsor a friend
Image by Arteida MjESHTRI

Sponsor a Butterfly

Sponsoring a child with epidermolysis bullosa (EB) can have a profound and life-changing impact, both on the child and their family. Epidermolysis bullosa is a rare and severe genetic skin condition that causes the skin to be extremely fragile, leading to frequent blisters, open sores, and chronic pain. The challenges associated with EB can be overwhelming, and for many families, the financial burden of managing the disease can be significant. By sponsoring a child with EB, you provide critical support that helps improve their quality of life, access to treatment, and overall well-being. 

If you are ready to make an impact & improve the quality of life of a child with EB, contact us and know more! 

Contact Us

For more information, reach out

Butterfly Wings is a charitable Organisation registered in Jordan (1531)
Amman | Jordan

Butterfly Wings Organisation is a member of the DEBRA International's global network. find out more


DEBRA International is the umbrella organisation for a worldwide network of national groups that
work on behalf of those affected by the rare genetic skin blistering condition, epidermolysis bullosa
(eb).

Butterfly wings organisation

The Butterfly skin charity

info@butterflywings-eb.org

+962 (0) 79 2242 383

© Copyright 2025, All Rights Reserved by butterfly wings organisation | This website is for informational purposes, always check with your physician before adopting any medical treatment.

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