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This is  how life feels to
people with
EB

All types of EB are characterised by fragility of the skin and mucous membranes that blister and tear from mechanical friction or trauma.

"Children with EB live in constant pain. You have the power to bring them comfort and hope."


"Don’t scroll past — make a difference right now. Every second counts

Contact Us

For more information, reach out

Butterfly Wings is a charitable Organisation registered in Jordan (1531)
Amman | Jordan

Butterfly Wings Organisation is a member of the DEBRA International's global network. find out more


DEBRA International is the umbrella organisation for a worldwide network of national groups that
work on behalf of those affected by the rare genetic skin blistering condition, epidermolysis bullosa
(eb).

Butterfly wings organisation

The Butterfly skin charity

info@butterflywings-eb.org

+962 (0) 79 2242 383

© Copyright 2025, All Rights Reserved by butterfly wings organisation | This website is for informational purposes, always check with your physician before adopting any medical treatment.

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